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My name is Mistie Morgan and my daughter Aaliyah was born
on July 21, 2002.
We are from Billlings, Montana. Vein of Galen has never
been seen in our State or the surrounding areas, so I have been told. Looking
back at Aaliyah's birth, there were signs that something was wrong, but we
were always reasured she was fine. She had to be delivered emerency
c-section and when she was born she was not breathing. They took her to NICU
for two hours and brought her back and said she was just fine. Over the next
9 months my husband and I saw that she was no being able to sit up on her own
and she had no energy. After going to 3 doctors, the last one ordered a cat
scan and they gave us the news that night. I really do not remember much, I
just felt my body shut down and I could not think. For days I just layed in
my bed and I did not want to wake up. One month later we were sent to the
UCSF in San Fransisco. Her surgery for embolzation took 10 hours and she has
87 coils in her head. She did great and the doctors were very optomistic. We
were sent home. One month later my baby had a brain bleed and was on a
breathing tube. They said that it is very rare to have them, but it can
happen. UCSF sent a jet out and picked up her and I and took us back to the
hospital in San Fransisco. We were ther for three weeks. At that time they
found out that they needed to put in a shunt. And then we were able to go
home. Two weeks after being home I took her back to the Hospital here in
Billings, they said she was having an allergic reaction to her stitches.
Surgery again to replace them. Home again we were sent after a couple of days
and than a month later she was back. This time for a shunt infection, three
weeks in the hospital again. It has been 2 years since my baby has been in
the hospital. Yes we have lots of doctors visits, but she is really doing
well. She started walking at 2 1/2. She is still behind but she is catching
up really fast. We were told this week 12/16/05 that she is having night
seizers now and have put her on medication, right now that is our biggest
worry. She talks all the time, she is the happiest most loving little girl.
They even put her in Pre-school this year to catch her up. They call her the
Social Director. Every day is a blessing with her and we are proof that
babies can get past this When i can I will submit some pictures!
Update Story
20/02/2007
Aaliyah is a very active 4
year old that is making up for lost time. She is quickly catching
up. She will be going to kindergarden next year, but will not be in a
regular class room. She started having seizures over a year and a half
ago. We are trying all kinds of medication to try and control
them. The doctors are now looking at surgery to stop them
altogether. We are just so blessed everyday that she is here with us
and we together can get through whatever is ahead of us!!
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